Lyme Disease Registry

Lyme Disease Registry

Description of the Lyme Disease Registry

The mission of the Western Connecticut Health Network Lyme Disease Registry is to create a comprehensive database of patients with Lyme disease that will serve as the basis for multidisciplinary research leading to a better understanding of:

  • The course of the disease and how people are affected,
  • Causes of persistent symptoms, and
  • Improved diagnosis and treatment.

We believe that improvement in the quality of care for this community can occur through the support of well-designed community-based participatory research, a collaborative approach to research that equitably involves all partners in the research process and recognizes the unique strengths that each brings.  Accordingly, we welcome input from other researchers, physicians, and patients.

The WCHN Lyme Disease Registry represents an important step toward providing concrete answers about the impact of Lyme disease.  Analysis of the data collected will help to inform the development of evidence-based care for those who suffer from the effects of this disease.

If you have ever been diagnosed with Lyme disease you may be eligible for participation in this study, as well as other Lyme disease studies conducted at the WCHN Biomedical Research Institute. Contact us today at lyme.registry@wchn.org to see if you are eligible.

Publications

Lobraico J, Butler A, Petrini J, Ahmadi R. (2014). New insights into stages of Lyme disease symptoms from a novel hospital-based registry. J Prim Care Community Health 5(4):284-287.

Grants

The WCHN Lyme Disease Registry initially was made possible through the generosity of a donor within the Greater Danbury community.

Centers for Disease Control and Prevention funding awarded for serologic testing of WCHN Lyme Disease Registry samples.

Personnel

  • Joann Petrini, PhD, MPH, Director, Clinical Outcomes and Health Services Research; Associate Clinical Professor, Albert Einstein College of Medicine
  • Amber Butler, MPH, Lead Research Associate
  • Lauren DiLello, Research Associate

Collaborations

The WCHN Lyme Disease Registry team is involved in collaborative projects with other investigators at the WCHN Biomedical Research Institute and is actively pursuing collaborative opportunities with other investigators in the field.  

The WCHN Lyme Disease Registry team also is dedicated to educating the public about tick-borne disease prevention and early detection. Thank you to Union Savings Bank for supporting this effort.

Contact Us

For more information about the Western Connecticut Health Network Lyme Disease Registry or to schedule your appointment to join the Registry, please call (203) 739-8383 or email lyme.registry@wchn.org